I have a rare skin condition called ILVEN. I was wondering if anyone had it and had done something to help treat it (apparently there is no cure) I've had surgery that got rid of the majority of it but I still have little areas that they couldn't remove.
Treatment for ILVEN?
Please tell me what the initials stand for and/or what the symptoms are, I am not familiar with it, thanks!
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i have ilven 2 and im 14 and how much is the surgery? i relly want this to get off it is on my face and it relly bothers me. I get made fun of for it and did the surgery work?
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